Post by Cathy on Jul 3, 2007 12:53:42 GMT -4
Hi all.
I just got back from my Rheumy appt. and she actually said 'it'. After discussing how things have been since I saw her in April, test results, other doc visits and test results from them, etc...we were talking about all these neurological problems/symptoms I have been having-some of which are worse or new since I last saw her and she was standing in front of me, I was sitting on the 'table' and she said, "Well, I'm just gonna say it...I think you may have MS."
She went on to say she is sure all this is all from a neurological problem-possibly MS-and that I need to tell the new neuro everything this coming friday at my appt with him. She even said she's heard of him and he's good. he's an MS-Savvy neuro. She had copies made of all things she wants me to give him, told me to get the films from my last MRI-the one of the inner auditory canal-and told me to write down all my symptoms to hand him and tell him she told me to do so because of how bad my memory/cognitive problems are. She even wrote a short note for me to give him from her, telling her suspicions of either MS or CNS Lupus(which would be very bad if the Lupus has gone to my brain-the worst news for a lupie)
I said to her that I thought they ruled CNS out...she said yes, but no, basically and then went on to tell me of tiny lessions (the report says- "a few tiny T2 hyperintense periventricular white matter foci are seen") on the last MRI report she got from my old neuro from when I was in the hospital in April-the guy who said all was fine and blamed everything on my Fibromyalgia!!!-the same one she called and pretty much told off!
She said much of what I'm delaing with now is in line with MS.
I am just numb right now. I knew this could be a possibility, but to actually hear her say it!!! OMG! And the CNS Lupus would be even worse!! I just don't know how much more i can take! Don't I have enough DXs already??? I don't need or want anymore!!! I'm so tired of all of it. It never ends, only gets worse.
I guess we'll see what the neuro has to say on Friday and take it from there. Nothing else I can do anyways.
Cathy
I just got back from my Rheumy appt. and she actually said 'it'. After discussing how things have been since I saw her in April, test results, other doc visits and test results from them, etc...we were talking about all these neurological problems/symptoms I have been having-some of which are worse or new since I last saw her and she was standing in front of me, I was sitting on the 'table' and she said, "Well, I'm just gonna say it...I think you may have MS."
She went on to say she is sure all this is all from a neurological problem-possibly MS-and that I need to tell the new neuro everything this coming friday at my appt with him. She even said she's heard of him and he's good. he's an MS-Savvy neuro. She had copies made of all things she wants me to give him, told me to get the films from my last MRI-the one of the inner auditory canal-and told me to write down all my symptoms to hand him and tell him she told me to do so because of how bad my memory/cognitive problems are. She even wrote a short note for me to give him from her, telling her suspicions of either MS or CNS Lupus(which would be very bad if the Lupus has gone to my brain-the worst news for a lupie)
I said to her that I thought they ruled CNS out...she said yes, but no, basically and then went on to tell me of tiny lessions (the report says- "a few tiny T2 hyperintense periventricular white matter foci are seen") on the last MRI report she got from my old neuro from when I was in the hospital in April-the guy who said all was fine and blamed everything on my Fibromyalgia!!!-the same one she called and pretty much told off!
She said much of what I'm delaing with now is in line with MS.
I am just numb right now. I knew this could be a possibility, but to actually hear her say it!!! OMG! And the CNS Lupus would be even worse!! I just don't know how much more i can take! Don't I have enough DXs already??? I don't need or want anymore!!! I'm so tired of all of it. It never ends, only gets worse.
I guess we'll see what the neuro has to say on Friday and take it from there. Nothing else I can do anyways.
Cathy
Im so sorry hun. 
